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About Us

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Originally called the Cystic Fibrosis Holiday Fund for Children, the CFHF was set up in 1986.

The late Lawrence Levy, along with dedicated medical practitioners, was one of the driving forces behind the charity.The Fund’s main objective was “the provision of holiday and ancillary facilities to those under the age of 18 years suffering from cystic fibrosis”.

Holidays were then arranged for groups of children, both in the UK and abroad, escorted by friends, family members, medical staff and volunteers. These group holidays were stopped in 2000 due to medical advice concerning the risk of cross infection.

Now, the CFHF dedicates it’s time to two grant programs, Respite Break Grants, and the more recent Family Revitalise program , both of which aim to provide children with CF and their families with the opportunity to spend some down time together and create happy memories.

Over the years the CFHF has been lucky enough to have been supported by many well-wishers, from top golfers to comedians and musicians to television presenters, and has helped many hundreds of young people and their families take much needed breaks.

In 2001 Lawrence’s siblings, Peter and Jane became trustees of the charity and Jane’s son, James Jason took over as the charity’s chairman.

Meet the Team

Office Staff

Laurie Howard

Laurie Howard

Laurie is Director of the CFHF and has been with the charity since 2015. Laurie is mum to two girls aged 8 and 9 and lives in Brixton, London.

Laurie Howard

Laurie Howard

Laurie is Director of the CFHF and has been with the charity since 2015. Laurie is mum to two girls aged 8 and 9 and lives in Brixton, London.

Trustees

James is our Chair of Trustees. He is a father of three active teenagers, living near Maidenhead in Berkshire. James has been involved with CFHF since 1996. He is a London based Company director with experience in the retail, motor and property industry.

James Jason

James Jason

James Jason

James Jason

James is our Chair of Trustees. He is a father of three active teenagers, living near Maidenhead in Berkshire. James has been involved with CFHF since 1996. He is a London based Company director with experience in the retail, motor and property industry.

Jane Jason OBE

Jane founded Dementia UK and has been involved with CF for over 50 years.

Jane Jason OBE

Jane Jason OBE

Jane Jason OBE

Jane founded Dementia UK and has been involved with CF for over 50 years.

Rachael is a previous director of the CFHF and now works as a Director at Cancer Research UK.

Rachael Gormley

Rachael Gormley

Rachael Gormley

Rachael Gormley

Rachael is a previous director of the CFHF and now works as a Director at Cancer Research UK.

Jackie Francis

Jackie Francis

Jackie is a CF nurse specialist at the Royal Brompton Hospital, she is chair of our Medical Advisory Panel and has been with the CFHF since it was founded.

Jackie Francis

Jackie Francis

Jackie is a CF nurse specialist at the Royal Brompton Hospital, she is chair of our Medical Advisory Panel and has been with the CFHF since it was founded.

James Hall

James Hall

James Hall

James Hall

Jonathan Clarke

Jonathan Clarke

Jonathan Clarke

Jonathan Clarke

Robert Frumkin

Robert Frumkin

Robert Frumkin

Robert Frumkin

Daniel Ellison

Daniel Ellison

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