The Cystic Fibrosis Trust has a very informative support page for people travelling with CF. You can find lots of helpful information and tips from them here.
With regards to insurance we have been recommended Towergate by many parents and have consistently had positive feedback from families. Towergate offered us a commission if we agreed to continue recommending them however since this would have been a conflict of interest we declined, though we continue to refer families to Towergate due to their reasonable prices and their understanding of CF. Towergate has offered instead to give a discount to our families, so if you mention the CFHF you may get a bit off your insurance quote. We have no formal relationship with Towergate and we welcome any feedback you have to give us on them or any other company.
Some families have also recommended Insurewith and AXA. The more feedback you give us the better the information we have to pass on to other families, so please do let us know what your experiences are.
“On the 24/09/17 I contacted the CF Holiday Fund for advice on travel insurance as we were struggling to find any that was affordable. For the four of us including my daughter who has CF we were being quoted around £3,000 for two weeks cover in Orlando, Florida. My boss at work found us a quote for around £1,100. But then I got in touch with Laurie from the CF Holiday Fund and she recommended Towergate Insurance. To my amazement I got a quote from them for the four of us for the two weeks for £105.36! They were very thorough and knowledgeable about CF which was very reassuring! I'd like to say thank you to Laurie for telling me about them and thank you to Towergate too!! Thanks again, Gavin Burns.”