Family Revitalise is our programme of funded holidays made possible by CLC World Resorts and Hotels donation of free accommodation in their luxury resorts. Studies have shown the value of a holiday for families struggling with CF; the psychological uplift has a direct impact on the effectiveness of treatments and subsequent measurable heath outcomes. These holidays help children with CF stay healthier. Time and again we hear from our families that these trips would not have been possible without our help, and that the excitement of planning for these trips and the reliving of memories together is a high point of family life.
The CFHF is here to help these amazing families have positive experiences and make happy memories.
The testimonies are from families that have already returned from their holidays in the Family Revitalise 2017 and early 2018 programmes.
As a single mum my daughter with CF is always on my mind, there’s all the worrying that her CF’s going to get worse. I’ve given up my job to look after her so there’s not much money, To get away and to not to think about cystic fibrosis for a while, My daughter was so happy. She could tell the difference in me. It was a kind of therapy for us.
As a single mum my daughter with CF is always on my mind, there’s all the worrying that her CF’s going to get worse. I’ve given up my job to look after her so there’s not much money, To get away and to not to think about cystic fibrosis for a while, My daughter was so happy. She could tell the difference in me. It was a kind of therapy for us.
Mum said: “It was a well needed and well received break xx thank you so much! To anyone that gets to visit in the future. Definitely visit The Scottish dear centre! (We went twice!) fed the deer, saw the brown bears and more!”
Mum said: “It was a well needed and well received break xx thank you so much! To anyone that gets to visit in the future. Definitely visit The Scottish dear centre! (We went twice!) fed the deer, saw the brown bears and more!”
“My son with CF has had a really tough last 18 months. We all really needed this holiday and loved every second. Here he is in front of his favourite ride at Universal. We got so many photos and captured so many precious memories thankyou, thankyou, thankyou.”
“My son with CF has had a really tough last 18 months. We all really needed this holiday and loved every second. Here he is in front of his favourite ride at Universal. We got so many photos and captured so many precious memories thankyou, thankyou, thankyou.”
Mum told us, “My son had an amazing time, was on the go from the second he got up and did not stop! Was great to spend the time together as a family. Thank you so, so much it means so much to us all! X”
Mum told us, “My son had an amazing time, was on the go from the second he got up and did not stop! Was great to spend the time together as a family. Thank you so, so much it means so much to us all! X”
My family and I are so grateful for our Spanish holiday. You will not believe how wonderful it was for us to go on a holiday. Most of the time, we have to deal with my daughter with CF's medical needs which leaves very little time for anything else. Things have been hard and as such I am not able to return to employment so we have no extra finances for holidays. When you contacted us we could hardly believe it. It felt like a dream.
My family and I are so grateful for our Spanish holiday. You will not believe how wonderful it was for us to go on a holiday. Most of the time, we have to deal with my daughter with CF's medical needs which leaves very little time for anything else. Things have been hard and as such I am not able to return to employment so we have no extra finances for holidays. When you contacted us we could hardly believe it. It felt like a dream.
The CF nurse told us “Mum and Dad do an amazing job looking after her health needs but at times struggle with the emotional effect if having a child with CF. By going on a summer holiday together they will have time to make lots of fun happy memories and hopefully be able to put CF on the backburner for a week at least.”
The CF nurse told us “Mum and Dad do an amazing job looking after her health needs but at times struggle with the emotional effect if having a child with CF. By going on a summer holiday together they will have time to make lots of fun happy memories and hopefully be able to put CF on the backburner for a week at least.”
These two boys have CF. Big brother also has Perthes Disease and prior to this holiday his little brother had suffered from a Wilm’s Tumour. This holiday enabled the family to have some care free time together and fortunately he is still cancer free.
These two boys have CF. Big brother also has Perthes Disease and prior to this holiday his little brother had suffered from a Wilm’s Tumour. This holiday enabled the family to have some care free time together and fortunately he is still cancer free.
The CF team told us “Mum is carer for the children with one child having CF and another child with significant health needs the pressures are great. Mum has a part time job but would not be able to afford this type of holiday for the family. Child with CF is great at doing her treatments and requires regular IV antibiotics and this will be a well deserved reward for all her hard work.”
The CF team told us “Mum is carer for the children with one child having CF and another child with significant health needs the pressures are great. Mum has a part time job but would not be able to afford this type of holiday for the family. Child with CF is great at doing her treatments and requires regular IV antibiotics and this will be a well deserved reward for all her hard work.”
Mum and Dad told us "He had a very tough year last year with many hospital admissions and greuling treatments, so to enjoy a lovely, relaxing week away in the sunshine, spending quality time with his family away from the harsh reality of Cystic Fibrosis, was such a welcome respite for him and the family as a whole.”
Mum and Dad told us "He had a very tough year last year with many hospital admissions and greuling treatments, so to enjoy a lovely, relaxing week away in the sunshine, spending quality time with his family away from the harsh reality of Cystic Fibrosis, was such a welcome respite for him and the family as a whole.”
“It really was amazing we couldn’t have asked for more. The resort was beautiful and they treated us like royalty they couldn’t do enough for us. And you too with helping organise and plan everything and even texting whilst we were there to make sure everything was okay. We honestly can’t thank you enough it means more than you can imagine.” – Mum
“It really was amazing we couldn’t have asked for more. The resort was beautiful and they treated us like royalty they couldn’t do enough for us. And you too with helping organise and plan everything and even texting whilst we were there to make sure everything was okay. We honestly can’t thank you enough it means more than you can imagine.” – Mum
“I’d like to thank everyone who was involved with making mine and my families holiday to Florida the most amazing experiences of our lives! This holiday allowed me to spend a lot of precious quality time with my family and we created memories that I will never forget. It allowed me to both relax and get some well needed sun and also explore and try new things which I got to enjoy with my whole family.”
“I’d like to thank everyone who was involved with making mine and my families holiday to Florida the most amazing experiences of our lives! This holiday allowed me to spend a lot of precious quality time with my family and we created memories that I will never forget. It allowed me to both relax and get some well needed sun and also explore and try new things which I got to enjoy with my whole family.”
Mum told us her son has severe liver disease and had to undergo banding of the oesophageal varicies in London on three occasions in recent months which has been quite traumatic for the whole family.” The family were further distressed after a close relative passed away suddenly. “I just wanted to message and say a massive thank you for the Holiday to Spain. It was lovely to just get away and spend time together after having a horrible few months.”
Mum told us her son has severe liver disease and had to undergo banding of the oesophageal varicies in London on three occasions in recent months which has been quite traumatic for the whole family.” The family were further distressed after a close relative passed away suddenly. “I just wanted to message and say a massive thank you for the Holiday to Spain. It was lovely to just get away and spend time together after having a horrible few months.”
Dad told us "My daughter turned 9 at the start of this month, and if you met her she would come across as a bubbly, talkative, happy girl, few suspecting how challenging her life actually is on so many levels... her consultants have now openly said that despite all our best efforts she is quite severely effected by her CF, and that as things stand, they would not be overly surprised if she ends up needing a double lung transplant by her late teens.”
Dad told us "My daughter turned 9 at the start of this month, and if you met her she would come across as a bubbly, talkative, happy girl, few suspecting how challenging her life actually is on so many levels... her consultants have now openly said that despite all our best efforts she is quite severely effected by her CF, and that as things stand, they would not be overly surprised if she ends up needing a double lung transplant by her late teens.”
